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I'm so disappointed in anyone who marries a woman or man with Huntington's in this day and age and decides to have children. Absolutely stupid.

My dad has the disease, its so hard because we don’t have any support from my dad’s family. My mom takes care of him and it’s super hard for her and it’s really hard to me watch this everyday and be a part of it. I’m so scared of me or my brother having it and I get angry at my parents for not being more thoughtful and not make the decision to have a child when the sickness runs in the family. I just hope to god that we don’t have it and I’ll be super careful when it comes to having a child.

This decision isn't difficult, if you are at risk with HD... DON'T HAVE CHILDREN... I have a child dying from this disease and you keep risking chldren. NOT HARD, STOOOOPPPPPPPPPPPPPP HAVING CHILDREN, then it ENDS.

I am so sorry....the hard truth is horrible.....my wife passed away from HD...she never informed me of the DISEASE HD. We have 2 children my son first my daughter second. My daughter Mariah has HD.....this is very hard for her and myself...so hear is the solution... if you are at risk dont have CHILDREN. the risk of 50/50 is not worth it when you watch your child go through this. VERY SIMPLE STOP HAVING CHILDREN.

Read the book about Ron Cox's family going through it....I can't remember the name of it. Amazing

Huntington's symptoms don't usually show up until later adulthood, mid- to late-30s, 40s, even 50s, usually after they've already become parents. Until recently, there was no other way to know but symptoms starting... and even then, it was often misdiagnosed. Now there's a genetic test. A lot of people who have children suffering now did not know they had the HD gene. The family I know that has it had no idea anyone in the family had it until they already had two children. The mom showed symptoms after that. They knew there was some kind of spasticity in a relative, but not that it was Huntington's and not that she had it. Her own parents hadn't shown it when she had children (I think one had been misdiagnosed & then died young). Severity and age of onset vary so widely... don't assume anyone knew. Until someone in the family is correctly diagnosed, no one has any idea they're at risk, and many have never even heard of it. I don't think my friends would ever have risked having children had they known. The juvenile form is not very common. HD is a repeated genetic sequence normally; having a lot of extra repeats is Huntington's. The more extra repeats a person has, the more severe the case and the younger the onset. So even in a family, everyone's can come on differently and at different ages. Please don't judge with assumptions.

You are a brave, smart, responsible, caring and honest young woman....

People with HD need to stop having kids bro, adopt them instead, so that you don’t pass on the genes. God bless every kid who has to consider their chances of living past 70, or takes a test to determine how short their lives will be.

Gracias por este aporte. Me siento completamente identificada en la situación de Javier. Cuide 12 años a mi esposo y no es facil encontrar información competente en diferentes idiomas fuera del ingles. Mucha fuerza y paciencia para todos los cuidadores. Con amor se puede todo ;) 😅

Families should not be having biological children 50% chance is still a high percentage our family suffers with JD we lost my great grandfather, grandfather I lost lost many many aunts and uncles.. my mother does not have it, so I chose to have a family of my own. We are in Canada Ontario

What a horrible disease ❤❤❤❤

Muito obrigado pela informação.

not sure how you could have kids knowing of the family history

This is a disease that could be wiped out in a generation if people got tested and if positive sterilised., it is a wicked disease that used to be known as "Huntington's Chorea". However people with this illness seem to have many children, which creates a burden on society.

I witnessed two siblings in their early 30's or so slowly dying in a nursing home with HD. They SUFFERED. They couldn't control their limbs and while they could still walk would have falls with injuries, they'd shake and jerk, twitch, had mental and emotional decline, memory loss... eventually inability to speak, hallucinations, and complete incontinence. Horrific. Their parents made this choice and these siblings surely died a horrible death at a young age. This disease SHOULD have disappeared long, long ago.

Im 45 and have Huntingtons. I never had biological kids but have loved my two step kids as my own. I love them so much and have never regretted any decision about having kids. The first time my kids met my mother she was bedridden and if you know, you know. Im thankful to god for these two blessings in my life. Im greatful for everyday.

because they suspected he was drunk. He had a bad turn ended up in social care home and died within 24 hrs. Fast track me and my husband were married a few years.... when this happened and we have a daughter who I pray does not have the gene... and I worry for my husband... how do I pay the mortgage and provide.. I'm gutted for him.. what will happen because he had the gene.... and the realistic outcome is I will be a widower in my late 50s trying to provide for my daughter and working 24/7 to provide without my companion ... I helped care for my father In law and it destroyed me... and it will feel even more devasting when my husband suffers and my daughter has to watch this decline... and I am sad the day she understands the disease and decides whether she will tested... I feel happy to have them in my lives but worry and have anxiety over the what ifs...

Why do they' have children knowing its generational. Also do the girls have it .

Selfish to have kids 😔

Kristen, You are just a astounding young Lady.God bless Youin all You do in Your life, and thank The Lord ! The video was just incredible.

Sisters ? Why do they have different accents ?

I don’t know why he wants so many languages it’s I think 90% in English-speaking people and it’s almost 100% European descent not Africa not Finland China or Japan so he doesn’t have to worry about those languages

Is there any surgery to stop shakes at least? Good bless the whole family !

thank you for sharing this, brings back those feelings I had when I received my results 21 years ago which still feels like yesterday. My emotions that day identical to yours and I just wish everyone else going forward gets the same negative result x

rip 🕊️

I think I reacted happier for her when they said her result than her husband did.

HD is NOT just a disease of middle age. ruclips.net/video/Sb6YjAfB1H0/видео.html

So inspirational! As a health care provider (ret.) this documentary should be mandatory viewing for medical students!

Good news!

It is not selfishness.

Most people with Huntington’s disease can be stubbornly in denial..it is the disease not the responsibility, it is part of the problem. I was an RN and I cared for several people with it.

Seems like the counselors that conduct the procedure could use some “counseling” to improve how they handle these young people. Some very insensitive handling of giving people the results.

What a wonderful man… maybe soon a breakthrough in curbing symptoms and progression. 🙏🏻🙏🏻🙏🏻🙏🏻

This disease is not that uncommon, I lost a good friend to it

Rip ❤🙏🌹

So interesting. Perplexing that the chances are 50/50 and yet so many positives with the embryos, and with people in general during testing. Congratulations on the twins… and for having the courage to stay on the path.

just seeing this & did a search for her brother, to find out her dad died of terminal brain cancer a couple years after this documentary 😢 😢😢

Is there any update about Michelle and her work?

Please stopped the background music!

Any updates on Matt? hows he doing?

Just don't have kids if you know you (will) have HD. They will either also have it and/or will have a parent you has. This should be a no brainer.

Just don't have kids if you can pass it on. Everything else is cruel and selfish. Even if they wouldn't have it they might end up having to see you pass from that horrible disease. Don't be selfish.

Question: why do u give birth ? 😡😡😡😡😡😡😡😡😡😡

I'm sure we would have had a cure by now if our government spent those trillions of our tax money on medical research instead of on the wars of other countries.

Everyone is saying the dad abandoned her mom but no... "she stayed in denial" which means she avoided all medication to attempt to control symptoms. As a parent and wife that was very selfish and irresponsible of her. It's easy to say how he should react when you aren't in his shoes.

Does anyone know what happened to Eloise? She really had my heart and I would love some information ❤️

I'd adopt if HD ran in my family. I couldn’t handle the guilt if I passed in on to my children.

If you knowingly had HD and decide to have a baby yoy basically giving that kid a death sentence. Their quality of life will be next to nothing. I think its very selfish to do that to an innocent human being....

I'm only 22 years old and I have the same symptoms as her

The parents are great human beings